Monday, June 10, 2013

Casting Away!

 Today Hannah was scheduled for her bone marrow biopsy/aspiration.  She also had her typical blood work and an IV start that both went really well!  Originally the plan was to infuse Hannah with platelets, have the biopsy, and then follow up with IVIG to try and save some of the platelets infused.  When the results came back her platelets were at 27,000 so Dr.Meeker said we would only have to do the bone marrow biopsy/aspiration!  Over the weekend Hannah was bruising with the slightest touch and by Saturday had petechiae all over her lower legs and back.  Today when Dr.Meeker saw Hannah he was shocked that her platelets were as high as they were... he said by appearance it looks as though her platelets were significantly lower over the weekend and have increased on their own!  Again we are far from normal but the fact that some of her platelets are surviving the attack of the antibodies is encouraging!
 Little Miss.Smiles always brightens the waiting room!  At some point a little boy snuck over and was watching Hannah play on her iPad from behind her chair... it was too cute and when she stood up he ran away really fast smiling. :)
 After her bloodwork and IV, we headed over to the PICU where Hannah's doctor, a PICU doctor, a nurse, a respiratory therapist, and a lab tech were all awaiting our arrival.  It was a little intimidating for Hannah when she first came in but everyone was SO incredible and after setting up her bed with her favorite blanket and placing an order for food to be ready when she awoke Hannah was feeling much more comfortable.  Hannah received conscious sedation for the procedure and it was AMAZING!  As the set up was complete and she could tell everything was going to start she began to get upset.  Approximately 10 seconds later she was sound asleep!  They welcomed John and I both to stay so we just sat back and watched. 
 You can see Dr.Meeker who is the physician sitting down performing the biopsy and aspiration.  It was a fairly quick procedure and within minutes they were done!
 Afterwards the nurse worked to get Hannah perfectly comfortable...
 And she continued to sleep.... for almost an hour!  Obviously she needed the rest!  :)
 Then out of the blue it was if someone snapped their fingers and Hannah sat right up, wide awake, and ready for food!
 Hannah ate some really yummy waffles and pineapple and then it was time to go home!
 Not sad to be leaving this place!
 And the final results.  So far no pain or tenderness and Dr.Meeker said at her age she probably won't experience much discomfort.  Rest for 24ish hours and then back to her normal activities.  She's already planning to swim tomorrow.... we'll see!
And what better way than to recover in Mom and Dad's bed like a queen.  All 3 sisters checking in on her and helping out where they can.  Such a brave and amazing little girl with family and friends who love her from all over the country!  So grateful for all of your thoughts and prayers today!

For now we wait for results.  Some will arrive in a couple of days and others in a couple of weeks.  Dr.Meeker wants to continue to see how her body responds on it's own and for how long without any medical intervention (obviously until it's necessary).  So we will try and make it until next Wednesday until the next set of labs and appointment to see him and discuss the next steps to take!  

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